Pacific SCD | About Us
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What Are Our Goals?

Our plan for addressing these goals includes raising awareness about the challenges that people with sickle cell disease face among policymakers, the general community and healthcare providers. We will propose and test solutions to those challenges in order to improve care and outcomes for people with sickle cell disease in our region, and all over the United States.

Goal 1

Improve accessibility to quality, coordinated, and comprehensive health care services available for individuals with SCD and their families;

Goal 2

Reduce morbidity and mortality caused by SCD by strengthening the network of knowledgeable providers utilizing evidence based practices in their care of adults and children with SCD; and

Goal 3

Continue to expand data collection and processing to document regional improvements in access, capacity, and outcomes.

Who Is Supporting This Work?

The Pacific Sickle Cell Regional Collaborative is funded through a grant from the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, Sickle Cell Disease Treatment and Demonstration Program. We are one of four regional grantees in the United States, and we are further assisted by the National Institute for Children’s Health Quality.

Why Is This Work Important?

Sickle cell disease is the most common inherited blood disorder in the United States. The complications of sickle cell disease – pain, infections, damage to organs (kidneys, lungs, brain), anemia – can be managed with proper medical care. However, such medical care is not always available for people with the disease. Adults with sickle cell disease in particular very often have a hard time finding healthcare providers who are well-prepared to take care of them. This can lead to serious complications that could have been prevented, including early death. The Pacific Sickle Cell Regional Collaborative strives to change that by making provider training about sickle cell disease more available; testing new models for delivering care in clinics and hospitals; and testing different approaches that encourage providers to use proven therapies and guidelines for sickle cell disease care. We include the voice of people with sickle cell disease, their families and their community supporters as we address all of our goals.

Pacific Sickle Cell Region Collaboration
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