Peer Reviewed Articles

Peer Reviewed Articles 2018-05-04T14:09:36+00:00

Utilization and Costs

  • Acute Care Utilization and Rehospitalizations for Sickle Cell Disease JAMA. 2010;303(13):1288-1294. doi:10.1001/jama.2010.378. David C. Brousseau, MD, MS; Pamela L. Owens, PhD; Andrew L. Mosso, MS; Julie A. Panepinto, MD, MSPH; Claudia A. Steiner, MD, MPH
  • Allogeneic Hematopoietic Cell Transplantation for Children with Sickle Cell Disease Is Beneficial and Cost-Effective: A Single-Center Analysis. Biol Blood Marrow Transplant. 2015 Jan 20. pii: S1083-8791(15)00037-3. doi: 10.1016/j.bbmt.2015.01.010. [Epub ahead of print] Arnold SD, Jin Z, Sands S, Bhatia M, Kung A, Satwani P.
  • Association of care in a medical home and health care utilization among children with sickle cell disease. J Natl Med Assoc. 2013 Summer;105(2):157-65. Raphael JL, Rattler TL, Kowalkowski MA, Brousseau DC, Mueller BU, Giordano TP.
  • Health care utilization and expenditures for privately and publicly insured children with sickle cell disease in the United States. Pediatr Blood Cancer. 2009 Oct;53(4):642-6. doi: 10.1002/pbc.22069. Mvundura M1, Amendah D, Kavanagh PL, Sprinz PG, Grosse SD.
  • The Burden of Emergency Department Use for Sickle Cell Disease: An Analysis of the National Emergency Department Sample Database Am J Hematol. 2010 Oct; 85(10): 797–799. Sophie Lanzkron, MD, MHS, C. Patrick Carroll, and Carlton Haywood, Jr., PhD, MA
  • Age-related treatment patterns in sickle cell disease patients and the associated sickle cell complications and healthcare costs. Pediatr Blood Cancer. 2013 May;60(5):828-35. doi: 10.1002/pbc.24459. Epub 2013 Jan 17. Blinder MA, Vekeman F, Sasane M, Trahey A, Paley C, Duh MS.
  • Integration of Administrative Data and Chart Review for Reporting Health Care Utilization Among Children With Sickle Cell Disease. Sage Open. 2013;3(1):2158244013482470. Raphael JL, Tran XG, Mueller BU, Giardino AP.
  • Concentration of hospital care for acute sickle cell disease-related visits. Pediatr Blood Cancer. 2012 Oct;59(4):685-9. doi: 10.1002/pbc.24028. Epub 2011 Dec 16. Panepinto JA, Owens PL, Mosso AL, Steiner CA, Brousseau DC.
  • Multicenter COMPACT study of COMplications in Patients with sickle cell disease And utilization of iron Chelation Therapy. Curr Med Res Opin. 2014 Dec 31:1-11. [Epub ahead of print] Jordan L, Adams-Graves P, Kanter-Washko J, Oneal PA, Sasane M, Vekeman F, Bieri C, Magestro M, Marcellari A, Duh MS.
  • Population Based Surveillance in Sickle Cell Disease: Methods, Findings and Implications from the California Registry and Surveillance System in Hemoglobinopathies Project (RuSH). Paulukonis ST, Harris WT, Coates TD, Neumayr L, Treadwell M, Vichinsky E, Feuchtbaum LB. Pediatri Blood Cancer. 2014 Dec;61(12):2271-6. doi: 10.1002/pbc.25208.
  • Prevalence and predictors of return visits to pediatric emergency departments. J Hosp Med. 2014 Dec;9(12):779-87. doi: 10.1002/jhm.2273. Epub 2014 Oct 23. Akenroye AT1, Thurm CW, Neuman MI, Alpern ER, Srivastava G, Spencer SP, Simon HK, Tejedor-Sojo J, Gosdin CH, Brennan E, Gottlieb LM, Gay JC, McClead RE, Shah SS, Stack AM.

Quality of Life

  • Insurance status as a sociodemographic risk factor for functional outcomes and health-related quality of life among youth with sickle cell disease. J Pediatr Hematol Oncol. 2014 Jan;36(1):51-6. doi: 10.1097/MPH.0000000000000013. Robinson MR1, Daniel LC, O’Hara EA, Szabo MM, Barakat LP.
  • Predictors of health-related quality of life over time among adolescents and young adults with sickle cell disease. J Clin Psychol Med Settings. 2014 Dec;21(4):313-9. doi: 10.1007/s10880-014-9406-3. Jackson JL1, Lemanek KL, Clough-Paabo E, Rhodes M..
  • Differences in quality of life between pediatric sickle cell patients who used hydroxyurea and those who did not. Int J Health Care Qual Assur. 2014;27(6):468-81. Nwenyi E, Leafman J, Mathieson K, Ezeobah N.
  • Sleep disturbance, depression and pain in adults with sickle cell disease. BMC Psychiatry. 2014 Jul 21;14:207. doi: 10.1186/1471-244X-14-207. Wallen GR, Minniti CP, Krumlauf M, Eckes E, Allen D, Oguhebe A, Seamon C, Darbari DS, Hildesheim M, Yang L, Schulden JD, Kato GJ, Taylor JG 6th
  • Health-Related Quality of Life after Allogeneic Hematopoietic Stem Cell Transplantation for Sickle Cell Disease. Biol Blood Marrow Transplant. 2015 Jan 2. pii: S1083-8791(14)01407-4. doi: 10.1016/j.bbmt.2014.12.007. Bhatia M, Kolva E, Cimini L, Jin Z, Satwani P, Savone M, George D, Garvin J, Paz ML, Briamonte C, Arrieta EC, Sands S.
  • Health-related quality of life in children with sickle cell anemia: Impact of blood transfusion therapy. Am J Hematol. 2015 Feb;90(2):139-43. doi: 10.1002/ajh.23877. Beverung LM1, Strouse JJ, Hulbert ML, Neville K, Liem RI, Inusa B, Fuh B, King A, Meier ER, Casella J, DeBaun MR, Panepinto JA; SIT trial investigators.
  • Development and validation of the Youth Acute Pain Functional Ability Questionnaire (YAPFAQ). J Pain. 2014 Dec;15(12):1319-27. doi: 10.1016/j.jpain.2014.09.008. Epub 2014 Sep 30. Zempsky WT, O’Hara EA, Santanelli JP, New T, Smith-Whitley K, Casella J, Palermo TM
  • A controlled study of internalizing symptoms in older adolescents with sickle cell disease. Pediatr Blood Cancer. 2014 Dec 31. doi: 10.1002/pbc.25325. [Epub ahead of print] Kelly AD1, Egan AM, Reiter-Purtill J, Gerhardt CA, Vannatta K, Noll RB
  • Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me): Conceptual Model Based on Review of the Literature and Formative Research. Treadwell M, Hassell K, Levine R, Keller S. Clin J Pain. 2014 Oct;30(10):902-14. doi: 10.1097/AJP.0000000000000054.
  • Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks. Keller, S. D., Yang, M., Treadwell, M. J., Werner, E. M., & Hassell, K. L. Health Qual Life Outcomes, 2014 Aug 22;12:125. doi: 10.1186/s12955-014-0125-0.
  • Psychosocial and pharmacological management of pain in pediatric sickle cell disease. Postgrad Med. 2014 Mar;126(2):123-33. doi: 10.3810/pgm.2014.03.2748 Hildenbrand AK1, Nicholls EG, Daly BP, Marsac ML, Tarazi R, Deepti R.
  • The impact of sickle cell disease on oral health-related quality of life. Pediatr Dent. 2014 Jan-Feb;36(1):24-8 Ralstrom E, da Fonseca MA, Rhodes M, Amini H
  • Perspective: Thinking beyond survival Nature 515, S16 (13 November 2014) doi:10.1038/515S16a Published online 12 November 2014 Michael R. DeBaun
  • Emotional Distress, Barriers to Care, and Health-Related Quality of Life in Sickle Cell Disease J Clin Outcomes Manage 2015 Jan; 22(1): 10 – 20. Marsha J. Treadwell, PhD, Fernando Barreda, BA, Kimpreet Kaur, BS, and Ginny Gildengorin, PhD

Special Series

Journal of Clinical Outcomes Management – Working to Improve Sickle Cell Healthcare

  • Improving Care of Patients with Sickle Cell Disease and Sickle Cell Trait: The Hemoglobinopathy Learning Collaborative Series J Clin Outcomes Mange, 2014 Feb; 21(2), 59-60 Suzette O. Oyeku, MD, MPH, Elissa Z. Faro, PhD, and Charles J. Homer, MD, MPH
  • Quality improvement initiative improves emergency department care for pediatric patients with sickle cell disease. Treadwell M, Bell M, Leibovich S, Barreda F, Marsh A, Gildengorin G, Morris C. J Clin Outcomes Manage. 2014 Feb;21(2):62-70.
  • Using an Electronic Health Record-Based Registry to Improve Pediatric Sickle Cell Care APRIL 2014, VOL. 21 Patricia L. Kavanagh, MD, Amy E. Sobota, MD, MPH, Elizabeth S. McClure, BA, Philippa G. Sprinz, MD, MSc, and William G. Adams, MD
  • Using Quality Improvement Methods to Implement an Individualized Home Pain Management Plan for Children with Sickle Cell Disease MAY 2014, VOL.21, NO. 5, Lori E. Crosby, PsyD, Kenya Simmons, MBA, Peggy Kaiser, MSNP, Blair Davis, MS, Patricia Boyd, RN, Tiffany Eichhorn, MSN, RN, Tracy Mahaney, BSN, Naomi E. Joffe, PhD, Darice Morgan, MSN, Kathy Schibler, MSN, Viia Anderson, MSN, Charles T. Quinn, MD, MS, and Karen A. Kalinyak, MD
  • Transition Readiness Assessment for Sickle Cell Patients: A Quality Improvement Project JUNE 2014, VOL. 21, NO. 6, Jerlym S. Porter, PhD, MPH, Yvonne M. Carroll, RN, JD, Sheila Anderson, BSN, RN, Paul T. Lavoie Jr, PA-C, MHS, Latacha Hamilton, EdS, Margery Johnson, LCSW, and Jane S. Hankins, MD, MS
  • Using Patient Navigators to Help Adults with Sickle Cell Disease Obtain a Primary Care Home JULY 2014, VOL. 21, NO. 7 Linda S. Overholser, MD, MPH, Kathryn Hassell, MD, Rachelle Nuss, MD, Carol Reagan, MS, Shawnette Gillespie, Julie McAfee, Michael Regier, MSW, LCSW, Cheri Burge, Kathy Winder, RN, BSN, Thomas J. Bennet Jr, and Karen M. Chacko, MD

Evidence Based Guidelines

  • Management of sickle cell disease: summary of the 2014 evidence-based report by expert panel members. JAMA. 2014 Sep 10;312(10):1033-48. doi: 10.1001/jama.2014.10517. Yawn BP, Buchanan GR, Afenyi-Annan AN, Ballas SK, Hassell KL, James AH, Jordan L, Lanzkron SM, Lottenberg R, Savage WJ, Tanabe PJ, Ware RE, Murad MH, Goldsmith JC, Ortiz E, Fulwood R, Horton A1, John-Sowah J