A Targeted Approach
The Pacific Sickle Cell Regional Collaborative strives to change that by making provider training about sickle cell disease more available; testing new models for delivering care in clinics and hospitals; and testing different approaches that encourage providers to use proven therapies and guidelines for sickle cell disease care.
More than 100 million people worldwide have the genetic trait for sickle cell disease.
“To raise new questions, new possibilities, to regard old problems from a new angle, requires creative imagination and marks real advance in science.”
The Pacific Sickle Cell Regional Collaborative is a federally-funded project that seeks to improve the health and quality of life of children and adults with sickle cell disease, no matter where they live or seek care. We bring together sickle cell disease experts, people with sickle cell disease and their family members, primary care providers, sickle cell community based organizations, policy makers, public health departments, and others to address the unequal treatment that has led to poor care and poor outcomes for this population.