State Action Plans
During our current project period, one of the directives from the Health Resources and Services Administration (HRSA) was for each region to develop a Regional Sickle Cell Action Plan and state-specific Sickle Cell Action Plans that:
- identify resources in each region and state to improve sickle cell care for all individuals with sickle cell in the region and
- describe the overall infrastructure that will address the goals of the Sickle Cell Treatment Demonstration Regional Collaborative Program.
The state action plans describe:
- how states will develop a network of providers using evidence-based sickle cell care in the state;
- how telemedicine/telehealth and provider support strategies will be used;
- how access to quality care (with an emphasis on family engagement, adolescent transition to adult life, and care in a medical home) will be supported; and
- how to increase the number of individuals with sickle cell disease being treated by providers using evidence-based sickle cell care.
The Pacific Sickle Cell Regional Collaborative (PSCRC) provides financial and technical assistance to Core and Affiliated Centers in all 13 states within our region. Centers receiving core funding (AZ, CA, CO, NV, OR, and WA) were required to lead the development of a Sickle Cell State Action Plan for their respective geographic area.
We have made excellent progress in state action planning, holding face-to-face meetings and mentoring meetings between PSCRC leadership and state leads to determine the unique aspects of each state that will be addressed by the individual plans. PSCRC leadership provides technical assistance to state leads in developing partnerships, specifically in relation to community based organizations and state and regional agencies.
Each site lead was responsible for summarizing their state’s action plan. Below you will find icons of each state that developed a state action plan. Click on the icon of the state, whose action plan you wish to read.
For any questions regarding the initiative as a whole, please contact Shalini Vora, MPH at firstname.lastname@example.org and if you have any questions about a specific state’s action plan, please contact the individual specified below.