Web Resources

Federal Agencies

Centers for Disease Control and Prevention
http://www.cdc.gov/ncbddd/sicklecell/facts.html

National Heart, Lung, and Blood Institute
http://www.nhlbi.nih.gov/health/health-topics/topics/sca

Office of Minority Health
https://minorityhealth.hhs.gov/sicklecell

Sickle Cell Disease Toolkit: Social Media & Outreach Resources
(in English and Spanish)

Federal Initiatives

Registry and Surveillance System for Hemoglobinopathies
http://www.cdc.gov/ncbddd/hemoglobinopathies/rush.html
Public Health Research, Epidemiology, & Surveillance for Hemoglobinopathies
http://www.cdc.gov/ncbddd/hemoglobinopathies/phresh.html
Healthy People 2020
https://www.healthypeople.gov/2020/topics-objectives/topic/blood-disorders-and-blood-safety/objectives
Cure Sickle Cell Initiative:
https://www.nhlbi.nih.gov/science/cure-sickle-cell-initiative
National Academy of Science, Medicine, and Engineering: Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action
http://www.nationalacademies.org/hmd/Activities/SelectPops/AddressingSickleCellDisease/2019-FEB-21.aspx
Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program Report to Congress
https://www.nichq.org/resource/2017-2021-sickle-cell-disease-treatment-demonstration-regional-collaboratives-program

Providers

American Society of Hematology
http://www.hematology.org/

American Society of Hematology’s Benign Hematology Curriculum (BHC) is a series of free, web-based videos designed to supplement education in benign hematology for fellows and other clinicians who wish to learn more about the disorder. Each course focuses on a different benign hematology topic, with the goal of providing fellows with an educational resource that might not be available locally.

http://programs.ashacademy.org/bhc/