Federal Agencies
Centers for Disease Control and Prevention
http://www.cdc.gov/ncbddd/sicklecell/facts.html
National Heart, Lung, and Blood Institute
http://www.nhlbi.nih.gov/health/health-topics/topics/sca
Office of Minority Health
https://minorityhealth.hhs.gov/sicklecell
Sickle Cell Disease Toolkit: Social Media & Outreach Resources
(in English and Spanish)
Federal Initiatives
- Registry and Surveillance System for Hemoglobinopathies
http://www.cdc.gov/ncbddd/hemoglobinopathies/rush.html - Public Health Research, Epidemiology, & Surveillance for Hemoglobinopathies
http://www.cdc.gov/ncbddd/hemoglobinopathies/phresh.html - Healthy People 2020
https://www.healthypeople.gov/2020/topics-objectives/topic/blood-disorders-and-blood-safety/objectives - Cure Sickle Cell Initiative:
https://www.nhlbi.nih.gov/science/cure-sickle-cell-initiative - National Academy of Science, Medicine, and Engineering: Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action
http://www.nationalacademies.org/hmd/Activities/SelectPops/AddressingSickleCellDisease/2019-FEB-21.aspx
Providers
- American Society of Hematology
http://www.hematology.org/
American Society of Hematology’s Benign Hematology Curriculum (BHC) is a series of free, web-based videos designed to supplement education in benign hematology for fellows and other clinicians who wish to learn more about the disorder. Each course focuses on a different benign hematology topic, with the goal of providing fellows with an educational resource that might not be available locally.
Genetics Collaborators
- Western States Regional Genetics Collaborative
http://www.westernstatesgenetics.org/ - Mountain States Genetics Regional Collaborative
http://msgrcc.org/index.html
Coordinating Center
- National Institute for Children’s Health Quality
http://www.nichq.org/ - SCDTDP Congressional Report
http://sicklecell.nichq.org/resources/scdtdp-congressional-report
Community Based Organizations
- Sickle Cell Disease Foundation of California
http://www.scdfc.org/ - Sickle Cell Community Advisory Council of Northern California
http://www.sccac.net/ - Family Voices
http://www.familyvoices.org/ - Sickle Cell Disease Association of America
http://www.sicklecelldisease.org/ - Sickle Cell Foundation of Arizona
https://www.scfaz.org - Colorado Sickle Cell Association, Inc.
http://www.coloradosicklecellassociation.org/ - Sickle Cell Anemia Foundation of Oregon, Inc.
http://sicklecelloregon.org/

This website is partially supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $582,000. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS or the U.S. Government.
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