“Never doubt that a small group of
thoughtful, committed, citizens can change
the world. Indeed, it is the only thing that
– Margaret Mead
We are one of five regional grantees for the U.S. Sickle Cell Disease Treatment Demonstration Program
The Pacific Sickle Cell Regional Collaborative is funded through a five year grant from the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, as part of the Sickle Cell Disease Treatment and Demonstration Program. We are further assisted by ABT Associates and the American Homeostasis and Thrombosis Network.
HRSA awarded the regional grant covering the 13 Pacific states to The Center for Inherited Blood Disorders (CIBD) in Orange, CA for the 2021-2026 period and will oversee project implementation through the region in partnership with UCSF Benioff Children’s Hospital Oakland (UCSF). The PSCRC was also funded in the two prior periods that started in 2014.
The Pacific Sickle Cell Regional Collaborative (PSCRC) strives to improve the health and well-being of individuals with sickle cell disease (SCD) throughout our 13 state region.
CIBD in conjunction with UCSF Benioff Children’s Hospital in Oakland partners with core expert SCD clinicians in 13 states and our trusted partners.
To meet HRSA’s priorities, the PSCRC works to enhance the health of individuals with SCD through the following goals:
1. Strengthen systems of care for individuals with SCD and their families by synergizing with the SCD Newborn Screening Follow-Up Program, the SCDTDP regions, and the Hemoglobinopathies National Coordinating Center (HNCC) to facilitate partnerships between clinicians, community organizations and other stakeholders;
2. Improve outcomes for individuals with SCD and their families by developing and strengthening regional and state SCD network infrastructures that includes components necessary for providing comprehensive services;
3. Develop and support comprehensive care teams in seven states to increase access to evidence based care and the latest treatment options, increase collaboration and care coordination, and implement telehealth technologies;
4. Establish and maintain reporting mechanisms to provide data annually.