“Never doubt that a small group of thoughtful, committed, citizens can change the world. Indeed, it is the only thing that ever has.”

– Margaret Mead

We are one of five regional grantees for the U.S. Sickle Cell Disease Treatment Demonstration Program

The Pacific Sickle Cell Regional Collaborative is funded through a grant from the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, Sickle Cell Disease Treatment and Demonstration Program. We are further assisted by the National Institute for Children’s Health Quality.

Our Mission

The Pacific Sickle Cell Regional Collaborative (PSCRC) strives to improve the health and well-being of individuals with sickle cell disease (SCD) throughout our 13 state region.

HRSA re-awarded one of these regional grants to The Center for Inherited Blood Disorders (CIBD) to spread the PSCRC’s 2014–2017 SCD population health gains from 8 to 13 states. We are further assisted by the National Institute for Children’s Health Quality. We work collaboratively to pursue a common agenda which aims to: (1) improve health outcomes in individuals with SCD; (2) reduce morbidity, mortality caused by SCD; and (3) improve the quality of coordinated and comprehensive services to individuals with SCD and their families.

Our Approach

CIBD in conjunction with UCSF Benioff Children’s Hospital in Oakland (BCHO) partners with core expert SCD clinicians in 13 states, health departments, Community Based Organizations, health professions associations, HHS government partners, public health policy, and epidemiology experts.

To meet the goals of the HRSA Cooperative Agreement, the PSCRC works to enhance the health of individuals with SCD through these goals:

  1. Improve accessibility to quality, coordinated, and comprehensive SCD health care services for affected individuals.
  2. Strengthen the network of knowledgeable providers utilizing evidence based practices.
  3. Expand data collection and processing to document regional improvements in access, capacity, and outcomes.

Our Mission

The Pacific Sickle Cell Regional Collaborative (PSCRC) strives to improve the health and well-being of individuals with sickle cell disease (SCD) throughout our 13 state region.

HRSA re-awarded one of these regional grants to The Center for Inherited Blood Disorders (CIBD) to spread the PSCRC’s 2014–2017 SCD population health gains from 8 to 13 states. We are further assisted by the National Institute for Children’s Health Quality. We work collaboratively to pursue a common agenda which aims to: (1) improve health outcomes in individuals with SCD; (2) reduce morbidity, mortality caused by SCD; and (3) improve the quality of coordinated and comprehensive services to individuals with SCD and their families.

Our Approach

CIBD in conjunction with UCSF Benioff Children’s Hospital in Oakland (BCHO) partners with core expert SCD clinicians in 13 states, health departments, Community Based Organizations, health professions associations, HHS government partners, public health policy, and epidemiology experts.

To meet the goals of the HRSA Cooperative Agreement, the PSCRC works to enhance the health of individuals with SCD through these goals:

  1. Improve accessibility to quality, coordinated, and comprehensive SCD health care services for affected individuals.
  2. Strengthen the network of knowledgeable providers utilizing evidence based practices.
  3. Expand data collection and processing to document regional improvements in access, capacity, and outcomes.

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This website is partially supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $347,436.00. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS or the U.S. Government.

© 2019 PSCRC. Copyright 2012 – 2019 | PACIFIC SICKLE CELL REGIONAL COLLABORATIVE | ALL RIGHTS RESERVED