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- Centers for Disease Control and Prevention (May 2020). Data Brief: Healthcare Utilization for Vaso-occlusive Episodes by People with Sickle Cell Disease in California and Georgia, 2015.
- U.S. Department of Health and Human Services (2019, May). Pain Management Best Practices Inter-Agency Task Force Report: Updates, Gaps, Inconsistencies, and Recommendations.
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Health Policy refers to the “…Decisions, plans, and actions that are undertaken to achieve specific health care goals within a society.”
Our policy work seeks to build effective healthcare services and systems including clinical care, workforce, surveillance, outreach and education to address the needs of people and families affected by Sickle Cell Disease region-wide.