Publications
Resources
Sickle Cell Facts Infographic
UCLA Institute of American Cultures. (n.d.). Multilingual
Resource Hub https://www.translatecovid.org/
Articles
Fineman, S., Sacknoff, Gopal, S., Baker, J. (2022, July) Improving Health Equity: PA’s Role in Providing Comprehensive Care for Adults with Sickle Cell Disease in Outpatient Clinics. CAPA Magazine, 14-15.
Fineman, S., Sacknoff, S., Bastas, J., Baker, J. (2022, April) PA Training Innovation Promotes Equity for Sickle Cell. CAPA Magazine, 14-15.
Kanter J, Meier ER, Hankins JS, Paulukonis ST, Snyder AB. Improving Outcomes for Patients With Sickle Cell Disease in the United States: Making the Case for More Resources, Surveillance, and Longitudinal Data. JAMA Health Forum. 2021;2(10):e213467. doi:10.1001/jamahealthforum.2021.3467
2021 NICHQ Sickle Cell Disease Congressional Report
Kanter, J., et al. Building access to care in adult sickle cell disease: defining models of care, essential components, and economic aspects. Blood Adv 2020; 4 (16): 3804–3813.
Corder-Mabe, J., et al. Development of a Framework to Describe Functions and Practice of Community Health Workers, Journal of Continuing Education in the Health Professions (2019), 39:4, 265-269.
Centers for Disease Control and Prevention (May 2020). Data Brief: Healthcare Utilization for Vaso-occlusive Episodes by People with Sickle Cell Disease in California and Georgia, 2015.
U.S. Department of Health and Human Services (2019, May). Pain Management Best Practices Inter-Agency Task Force Report: Updates, Gaps, Inconsistencies, and Recommendations.
Cronin, R., et al. Modifying factors of the health belief model associated with missed clinic appointments among individuals with sickle cell disease, Hematology (2018), 23:9, 683-691.
Nihara, Y., et al. A Phase 3 Trial of l-Glutamine in Sickle Cell Disease N Engl J Med (2018) ;379:226-35.
Agrawal AK, et al. Virtual reality as complementary pain therapy in hospitalized patients with sickle cell disease. Pediatr Blood Cancer. 2019;66:e27525
Vichinsky, Elliott. Chronic organ failure in adult sickle cell disease. Hematology (2017), 435-439.
Evensan, et al. Quality of care in sickle cell disease Cross-sectional study and development of a measure for adults reporting on ambulatory and emergency department care. Medicine (2016), 1-7.
