Web Resources
Federal Agencies
Centers for Disease Control and Prevention
http://www.cdc.gov/ncbddd/sicklecell/facts.html
National Heart, Lung, and Blood Institute
http://www.nhlbi.nih.gov/health/health-topics/topics/sca
Office of Minority Health
https://minorityhealth.hhs.gov/sicklecell
Sickle Cell Disease Toolkit: Social Media & Outreach Resources
(in English and Spanish)
Federal Initiatives
- Registry and Surveillance System for Hemoglobinopathies
http://www.cdc.gov/ncbddd/hemoglobinopathies/rush.html - Public Health Research, Epidemiology, & Surveillance for Hemoglobinopathies
http://www.cdc.gov/ncbddd/hemoglobinopathies/phresh.html - Healthy People 2020
https://www.healthypeople.gov/2020/topics-objectives/topic/blood-disorders-and-blood-safety/objectives - Cure Sickle Cell Initiative:
https://www.nhlbi.nih.gov/science/cure-sickle-cell-initiative - National Academy of Science, Medicine, and Engineering: Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action
http://www.nationalacademies.org/hmd/Activities/SelectPops/AddressingSickleCellDisease/2019-FEB-21.aspx - Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program Report to Congress
https://www.nichq.org/resource/2017-2021-sickle-cell-disease-treatment-demonstration-regional-collaboratives-program
Providers
- American Society of Hematology
http://www.hematology.org/
American Society of Hematology’s Benign Hematology Curriculum (BHC) is a series of free, web-based videos designed to supplement education in benign hematology for fellows and other clinicians who wish to learn more about the disorder. Each course focuses on a different benign hematology topic, with the goal of providing fellows with an educational resource that might not be available locally.
Genetics Collaborators
- Western States Regional Genetics Collaborative
http://www.westernstatesgenetics.org/ - Mountain States Genetics Regional Collaborative
http://msgrcc.org/index.html
Coordinating Center
- ABT Associates
https://www.abtassociates.com/ - National Institute for Children’s Health Quality
http://www.nichq.org/ - SCDTDP Congressional Report
http://sicklecell.nichq.org/resources/scdtdp-congressional-report
